Nanocell-Q Liquid

According to the "Encyclopedia of Nutritional Supplements," CoQ-10 is a powerful antioxidant that may benefit people with autism in several different ways. CoQ-10 boosts the immune system in autistic sufferers, which can help to protect against oxidative stress, free radical damage and viral infections. CoQ-10 may also help to improve focus and concentration. It also may help to stabilize mood in people with autism.

Antioxidants are important substances in the body that prevents free radicals from damaging one's cells and other important organs. Free radicals can be acquired from food intake. When the food is digested, these free radicals are produced. In a healthy person's body, the antioxidants can battle the free radicals to prevent any further damage. However, the same cannot be said for the individuals with autism. These people have an unusually low antioxidant count in their bodies. This condition is inherent among people suffering from the brain development disorder. Without sufficient number of antioxidants, the free radicals are free to damage cells. Unfortunately, brain cells are among the cells that are attacked by these free radicals. To be sure, it has not been determined where this is the cause or an effect of autism. However, the fact remains: without sufficient antioxidants in the body, the free radicals can do damage.

This is where Coenzyme Q10. As a substance that functions as an antioxidant, Coenzyme Q10 has the capacity to cancel the effects of free radicals. This means that the body of infected individuals can be free from the harmful effects of these chemicals. To be more precise, Coenzyme Q10 prevents the oxidation of cells. Oxidation, too, is a process that can cause damage. While oxidation can be caused by free radicals, it is a natural process wherein the cells of the body wither or die due to damages. Coenzyme Q10 protects the cells so they can maintain their proper form. Without the free radicals and by preventing or delaying the process of cell oxidation, the body-specifically, the brain of a child with autism-can develop further, especially with the help of other supplements.

HHV-6

Human Herpesvirus 6 (HHV-6) is a set of two closely related herpes viruses known as HHV-6A and HHV-6B that infect nearly all human beings, typically before the age of two. The acquisition of HHV-6 in infancy is often symptomatic, resulting in childhood fever, diarrhea, and exanthem subitum rash (commonly known as roseola). Although rare, this initial infection can also cause febrile seizures, encephalitis or intractable seizures.
Like the other herpesviruses—Epstein Barr virus, varicella zoster virus, etc—HHV-6 establishes life-long latency and can become reactivated later in life. This reactivation has been associated with many clinical manifestations that can be seen in the “Associated Conditions” section of this site. Reactivation can occur in locations throughout the body, including the brain, lungs, heart, kidney and gastrointestinal tract. In some cases, HHV-6 reactivation in the brain tissue can cause cognitive dysfunction, permanent disability and death.
A growing number of studies also suggest that HHV-6 may play a role in a subset of patients with chronic neurological conditions such as multiple sclerosis, mesial temporal lobe epilepsy, status epilepticus and chronic fatigue syndrome. There is an urgent need for more studies that can prove or disprove the important disease associations that have been suggested.

Since its discovery in 1986, HHV-6 has been associated with a wide array of clinical conditions—many of which are listed in the menu at right. While the relationship between HHV-6 infection and some of these diseases are well established, the role of HHV-6 in many other conditions remains unclear. In addition to causing “acute” disease such as encephalitis, HHV-6 can also persist as a chronic infection, nearly undetectable by most current diagnostic tests. This subacute form of HHV-6 is likely to contribute to the pathology of many diseases associated with HHV-6. There is an urgent need for more sensitive diagnostic assays and studies that can prove or disprove the important disease associations that have been suggested.

Established Disease Assocations

Transplant Complications

• Bone marrow supression
• Colitis/diarrhea
• Delirium/CNS Dysfunction
• Encephalitis/Amnesia
• GVHD
• Hemophagocytic syndrome
• Hepatitis /Liver failure
• Pneumonitis
• Transplant Reactivation Overview

Encephalitis

• Encephalitis / Meningitis Overview
• Encephalitis in the Immunocompromised
• Encephalitis in the Immunocompetent
• Rhomboencephalitis
• Limbic Encephalitis
• Encephalomyelitis
• Amnesia

Rash & Roseola

Seizures

• Febrile Seizures
• Status Epilepticus

Cognitive Dysfunction

• Delirium
• Amnesia

Hypersensitivity (DIHS/DRESS)

• Drug Induced Hypersensitivity Syndrome (DIHS)
• Drug Reaction with Eosinophilia & Systemic Symptoms (DRESS)
• Stevens-Johnson Syndrome (SJS)

Immune Suppression

• Bone Marrow Suppression

Lymphadenopathy/Fever

Possible Disease Associations

Multiple Sclerosis

Chronic Fatigue Syndrome

Epilepsy

• Mesial/Temporal Lobe Epilepsy
• Status Epilepticus

Colitis/Diarrhea

Endocrine Disorders

Heart Disease

• Myocarditis
• Left Ventricle Disfunction
• Arteriopathies

Hemophagocytic Conditions

• Hemophagocytic Syndrome/ Histiocytosis

HIV/AIDS Progression

Liver Disease

• Hepatitis
• HIV/AIDS Progression

Lung Disease

• Organizing Pneumonia
• Pneumonitis

Cancer

• Hodgkin's Lymphoma
• Gliomas
• Cervical Cancer

Kidney Disease

Autoimmune Disease

Other Associations

• SIADH
• Hypogammablogulinemia
• Optic Neuritis
• Microangiopathy
• Mononucleosis
• Uveitis

Information from http://www.hhv-6foundation.org

Genetic Testing

We went to the genetics department last year at Cincinnati Children's.  I always send them copies of Mia's test results and follow up visit information.  After they saw the results from Dr. Lewis they are wanting to do some more blood work on Craig, Mia, and I, and then schedule a follow up appt.

Will be interesting to see what they say this time.

DAN Doctor Results

We got our results from our follow up visit. 

Mia's copper level went up, so they think she is getting it in a food or drink source.  We are having to increase Molybdenum to help with this.

Zinc level was still low,  we are going to continue to use a topical cream, as well as adding in zinc by mouth.  Very nervous about giving it to her by mouth, as it can cause upset stomach if you haven't ate enough. Mia is not always a big eater, and she has thrown up on Zinc before.

Vitamin D levels are still low, so we are continuing vitamin D drops.

Mia's iron is still low.

Her thyroid screen was normal, so will no longer have to take those supplements

Pyrrole level still shows diagnosis of Pyrolle Disorder, so we are continuing those treatments.

Post infectious titers were positive for a persistent elevated reaction to the roseola virus (HHV6).  This suggests the body is still reacting to this infection, and this causes inflammation.

We will be starting and Anti-Viral protocol which contains 5 different products after we get through the dosing changes of her regular medications.

Insignificant reaction to Strep

Lower IGA- so repeated blood work will need to be done.

We were able to discontinue multiple medications, YEAH!

We have also switched her from Diflucan to Nystatin Suspension.

We will go for our next follow up visit in a couple of months.