Cincinnati Childrens Visit

This week was our visit to 4 of Mia's specialists- Pulmonary, Gastro, and 2 Geneticists.  Our pulmonary visit went great!  Mia was able to come off 10 different medications.  So she is now on only 2 medications.  January of this year we were on 14 a day!  I feel a great part of this is due to the Gluten Free diet change.  Mia doesn't have to go back to pulmonary until Septemeber.  Possibly at that time they may put her on a maint. medication for the winter months, since that seems to be the hardest time for her.   Gasto was a joke.  He was the rudest doctor I have ever met.  I told him we would never be back, as he was not worth talking too.  Gentics wants to test Craig and I, but the cost is $2,000, which at this point we dont have extra money to do that testing.  They did say however that her duplication is on the part of the gene that is tied to brain function.  Her duplication is one they dont have a lot of information on, so we will go back once a year to see if they have discovered any new information, and they will also track her progess.  Mia did so well at her visits.  Only 1 tantrum!!! I was super excited, and so proud of my baby girl.